- complete exhaustion - I felt more tired getting out of bed today then I did getting into bed last night!
- dizziness - standing on one foot or turning quickly without teetering is now a dream
- nausea - my anti-nausea prescription has become my best friend, but sometimes it cannot even manage to
help (I have discovered that eating some old ginger snaps from the holiday season helps though)
- radiation "sunburn" - I am getting a great peeling "sunburn" from the heavy radiation directed to my forehead, my ear, and most of the left side of my skull. My head is also usually cold because the radiation aimed there is resulting in the loss of a decent amount of hair. So thank you to anyone who gave me a hat, they have become a good friend of mine when ever I have to go outside.
On the topic of my radiation, I managed to get a copy of the paper that shows how much radiation is directed at the different parts of my head! It shows the parts of my brain, the dosage, and the location. They created this at Dr. Stille's after they did a CT scan on me at my first appointment. It is color coded, but probably the most important color is purple. The purple area is the predominant space of my now removed tumor, so the purple space now is just filled with normal brain liquid. I have a hole in my brain! I think it is cool, particularly since I haven't lost any function as a result of my holey brain. (That is not meant to be a pun). There are also some colored lines, which you might not be able to see. The colored lines show the dosage of radiation.
I had a fun time as a nerd looking over this. I completely understand if you don't. My husband zoned out after a bit and started playing Angry Birds.
On another more humorous note, with the addition of my regular chemo drugs on top of my Temodar (the chemo drug just for brain tumors), eating has become a new adventure. Not necessarily because of the nausea, but because of the taste. I always heard people talk about how things will taste different, but I figured that it was a bit of people expecting it to taste different when it really didn't. I was completely wrong.
Nasty food that used to be good:
- oatmeal - my favorite flavor of oatmeal now tastes like cardboard (with the texture of mush)
- water - always tastes like metal (even my own saliva, which is just weird)
- maple syrup - just a sticky mess that makes pancakes soggy
- lemon - I'm pretty sure I could eat a whole lemon without wincing once from the sourness
- wheat bread - it doesn't taste bad, it just has no taste
- Dr. Pepper - my favorite soda now tastes more like a plain Coke (which isn't bad, just odd)
- spicy food - I am pretty sure I could eat a couple habaneros peppers without batting an eye or breaking a sweat
However, one nice thing about all the funky food tastes that I have right now is that I have been doing more adventurous cooking just because it is fun to see what I can and cannot taste. I learned yesterday that I now like pineapple and cheese on my pizza! (Canadian bacon is still gross, whether I'm on chemo or not. Ew.) The adventure food I'm trying tonight after not liking it too much when I was a kid . . . meatloaf. Baked ground beef here I come!
Hey Shannon,
ReplyDeleteMy cousin posted a picture of her hubby on facebook with a mask like the one you must wear during your radiation treatments. He is being treated for throat cancer. The picture was of him on the radiation table waiting for his first treatment. I thought the mask had to be like your mask because of the pattern on your face in the photo you posted after having your mask removed. I gave his wife your blog address in case they wanted to check in on you. I thought maybe you could offer each other moral support, especially since your blog seems to be so upbeat even while you are going through things that are difficult. Always keep your positive outlook!
The more the merrier!
DeleteHaha! You are a nerd and that is cool. Keep on trying new foods and tinkering with others. A lot of people find that kicking up their foods a notch with citrus, herbs, and spices help them not taste like mush. And Tabasco makes teeny bottles that fit in purses. Just sayin ;) Sometimes people also are more susceptible to the metals in their water (and silverware)--hence the metallic taste with water. Even adding some cucumber or lemon to make 'fancy spa water' can help with that, and if it bugs you when you eat you can use plastic silverware. Weird, but it works!
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